Limitations in daily activities, risk awareness, social participation, and pain in patients with HTLV-1 using the SALSA and Participation scales

Aben-Athar, Cintia Yolette Urbano Pauxis; Pinto, Denise da Silva; Lima, Sandra Souza; Vallinoto, Izaura Maria Vieira Cayres; Ishak, Ricardo; Vallinoto, Antônio Carlos Rosário

doi:10.1016/j.bjid.2020.08.009

Cited by 4 publications

(4 citation statements)

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“…Based on the observational studies, it is confirmed that the main problems that affect these patients involve disorders of gait 21,22,8,23 , balance 24,25,26 , pelvic floor 27,28 spasticity 29,30 and pain 10,31,32,33 . These dysfunctions affect daily life activities 5,34 and quality of life 35 . These outcomes, therefore, should be systematically evaluated in surveys to monitor the evolution of the disease and the efficacy and safety of clinical interventions.…”

Section: Discussionmentioning

confidence: 99%

Research scenario in physiotherapy for people with human t-cell lymphotropic virus (HTLV): scientometric study / Cenário das pesquisas em Fisioterapia para pessoas com Human T-Cell Lymphotropic Virus (HTLV): estudo cientométrico

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Quixadá²,

Sá³

2022

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Introduction: Human T-Cell Lymphotropic Virus (HTLV) is a sexually transmitted retrovirus that can cause chronic pain of moderate to high intensity, spasticity and weakness in the lower limbs, balance, gait, urinary and sexual dysfunctions. Physiotherapy is a treatment that has been shown to be effective in improving symptoms and signs. However, research on the topic is scarce. Objective: Outline the research scenario in Physiotherapy aimed at people infected with HTLV-1. Methods: Scientometric study carried through Medline, Virtual Health Library, Scopus, Web of Science and Google Scholar databases. The metadata regarding the studies were tabulated and analyzed using descriptive statistics. The VOS.Viewer software was used for the analysis of quotes. Clinical studies were also analyzed considering meta-scientific impacts including analysis of conflicts of interest and methodological biases. Results: Initially 1160 studies were identified. After applying the eligibility criteria, 68 articles remained, of which 34 articles were observational studies, 21 on intervention, 9 on review, two on qualitative research and two on diagnostic accuracy. Brazil is responsible for 94.11% of the production on the theme. The sub-areas of Physiotherapy covered by the studies were neurofunctional and urogenital, using different exercise modalities, proprioceptive neuromuscular facilitation, biofeedback and non-invasive neuromodulation. Conclusion: On the topic of Physiotherapy for people with HTLV-1, Brazil occupies a prominent place in scientific production. Research on the subject receives little or no funding, requiring free of charge publications in journals, which affects its visibility.

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Section: Discussionmentioning

confidence: 99%

Research scenario in physiotherapy for people with human t-cell lymphotropic virus (HTLV): scientometric study / Cenário das pesquisas em Fisioterapia para pessoas com Human T-Cell Lymphotropic Virus (HTLV): estudo cientométrico

Tambon¹,

Quixadá²,

Sá³

2022

BJDV

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“…The study subjects were divided into two groups: (i) symptomatic patients with a clinical and laboratory diagnosis of HAM based on the Castro-Costa criteria ( 22 ) and (ii) asymptomatic patients. The instruments used for data collection included an adapted semistructured interview questionnaire ( 30 ), the Barthel Index, the Evandro Chagas Research Institute Neurological Disability Scale (EIPEC-2) ( 31 ) and the Occupational Roles Identification List. Notably, none of the analyzed patients underwent a therapeutic intervention during the study period.…”

Section: Methodsmentioning

confidence: 99%

Occupational Therapy for People Living With Human T-Lymphotropic Virus 1: Importance and Effectiveness of an Intervention Plan at the Level of Prevention and Rehabilitation

et al. 2022

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IntroductionHuman T-lymphotropic virus 1 (HTLV-1)-associated myelopathy (HAM) restricts activities of daily living (ADLs), affecting health and quality of life. Occupational therapy is used to promote independence during ADL in people living with HTLV (PLHTLV).ObjectiveTo quantify the clinical aspects, levels of functionality, performance in ADLs and occupational roles of PLHTLV and propose an occupational therapeutic intervention.MethodA cross-sectional, descriptive, observational study was designed with 40 PLHTLV monitored at two referral laboratories of the Federal University of Pará. The Evandro Chagas Research Institute Neurological Disability Scale (EIPEC-2), the Barthel Index and the Occupational Roles Identification List were applied. The G test and Fisher’s exact test (to identify associations between qualitative variables), the Mann–Whitney test (to identify associations between quantitative variables) and Pearson correlation analysis (to identify associations between the total Barthel Index and EIPEC-2 scores) were performed with Microsoft Excel and BioEstat 5.0, and the significance level was set at p ≤ 0.05.ResultsMotor aspects, the presence of spasticity, sensory aspects, and pain in the lumbar region and lower limbs were significantly (p = 0.0002) higher among symptomatic individuals, who also had more difficulties urinating, traveling up and down stairs and transferring from a chair to a bed. Being a worker, performing housework and socializing (with friends or family members) were the most affected activities among HAM patients.ConclusionThe impact of HAM on PLHTLV should include an intervention plan with occupational therapists in rehabilitation programs to create an important third-level prevention initiative, which may help achieve short-, medium-, and long-term goals. Asymptomatic PLHTLV should also be able to prevent future ADL impairment.

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“…As described previously ( 16 ), data collection took place through the clinical assessment of PLHTLV using a semistructured interview questionnaire, including the following questions: (i) identification; (ii) socio-economic data (marital status, profession/occupation, family income and education); (iii) epidemiological data (blood transfusion, injecting drug use, information on sexual relations, number of partners, use of contraceptive methods, history of STI, history of breastfeeding, family history of HTLV or HTLV-associated disease); and (iv) clinical data (time of HTLV infection, how the diagnosis was made, and questions about HAM symptoms). The following instruments were used: the SALSA Scale, a social participation scale, the Brazilian version of the SF-36 Quality of Life Questionnaire and the Summarized Pain Inventory.…”

Section: Methodsmentioning

confidence: 99%

Providing a Nursing Care Plan as a Requirement for Secondary Prevention for People Living With HTLV-1

et al. 2022

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IntroductionThe absence of nursing care plans aimed at people living with HTLV-1 (PLHTLV) led us to develop and test a proposed nursing care plan based on the evaluation of 55 PLHTLV to outline interventions according to the clinical stage.MethodsAfter interviews with symptomatic patients, nursing diagnoses were made using the NANDA International Nursing Diagnoses (The International Nursing Knowledge Association). Subsequently, interventions were selected through the Classification of Nursing Interventions (NIC), and expected results were selected through the Classification of Nursing Outcomes (NOC).ResultsThe actual diagnoses included (ii) chronic pain, (iii) impaired urinary elimination, and (iv) sexual dysfunction; the health promotion diagnosis was (i) risk-prone health behavior; and the risk diagnoses were (i) risk of feeling powerless and (ii) risk of falls in adults. Nursing care must prevent the lack of adherence to monitoring, establish goals and promote family involvement. A safe home environment requires intervention for fall prevention. Full support in understanding pharmacological and non-pharmacological therapies for chronic pain is needed. Interventions allow patients with impaired urinary function to be reintroduced to society. For sexual dysfunction, it is necessary to discuss safe sex and behavioral changes. Regarding risk behaviors, it is necessary to guide the patient/family, adapt language to the education level of these individuals, and help them better accept the condition, among other guidelines.ConclusionThe development of a nursing care plan for PLHTLV is essential for preventing the rapid progression of disease and the improvement of the quality of life of PLHTLV and should be included in the multidisciplinary approach to the secondary level of prevention of HTLV-1.

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Limitations in daily activities, risk awareness, social participation, and pain in patients with HTLV-1 using the SALSA and Participation scales

Cited by 4 publications

References 27 publications

Research scenario in physiotherapy for people with human t-cell lymphotropic virus (HTLV): scientometric study / Cenário das pesquisas em Fisioterapia para pessoas com Human T-Cell Lymphotropic Virus (HTLV): estudo cientométrico

Research scenario in physiotherapy for people with human t-cell lymphotropic virus (HTLV): scientometric study / Cenário das pesquisas em Fisioterapia para pessoas com Human T-Cell Lymphotropic Virus (HTLV): estudo cientométrico

Occupational Therapy for People Living With Human T-Lymphotropic Virus 1: Importance and Effectiveness of an Intervention Plan at the Level of Prevention and Rehabilitation

Providing a Nursing Care Plan as a Requirement for Secondary Prevention for People Living With HTLV-1

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