In Search of Culturally Appropriate Autism Interventions: Perspectives of Latino Caregivers

Abstract

Most evidence-based autism spectrum disorder (ASD) interventions are tested with primarily White, mid-upper class, English-speaking populations, despite the increase in Latino children with ASD in early intervention programs throughout the United States. Unfortunately, interventions that are incongruent with a target population's culture may be relatively ineffective. This mixed-methods study explored how culturally appropriate, feasible, and acceptable Latino caregivers perceived intervention models, strategies, and targets. Survey data were compared for 28 Latino and 27 non-Latino White parents of young children with ASD. Further, 20 Latino caregivers participated in focus groups to describe their challenges, perspectives and preferences for intervention strategies and models, and unmet needs from providers. These findings underscore the need for culturally modified interventions for Latino children and families.

Using stakeholder perspectives to guide systematic adaptation of an autism mental health intervention for Latinx families: A qualitative study

“…Given the high unmet service needs of Latinx families with a child with ASD (Magaña et al, ), when they do access services, it is critical to ensure that their unique needs are met by both EBIs and community providers alike. Indeed, these efforts are underway as disparities in diagnosis are closing and ASD prevalence in Latinx children is increasing (Magaña et al, ) and the argument for ASD‐specific interventions that consider Latinx cultural background is now gaining momentum in the field (e.g., DuBay, Watson, & Zhang, ; Lopez, Magaña, Morales, & Iland, ).…”

Perceptions, Experiences, and Needs of Parents of Culturally and Linguistically Diverse Children with Autism: a Scoping Review

“…Lack of knowledge of autism in the community, resulting in criticism of parents for having caused the condition, and subsequent experiences of isolation and stigma were described in several papers and in relation to a range of CLD communities, including the UK Somali community (Fox et al 2017;Hussein et al 2019), the African American community (Burkett et al 2015;Lovelace et al 2018), African Immigrant mothers in the UK (Munroe et al 2016), Asian Indian families in the USA (Zechella and Raval 2016), and Hispanic families in the USA (Cohen and Miguel 2018;DuBay et al 2018;Ijalba 2016). However, these sometimes coexisted with other responses.…”

“…The African American mothers in Lovelace et al's (2018) study had all experienced feeling discriminated against because of their race in one or more interactions with service providers. Communication was a key consideration in the review studies, with language barriers described as significantly impeding access to support and communication with service providers (DuBay et al 2018;Hussein et al 2019;Luong et al 2009). Fox et al (2017) noted that even proficient English speakers reported difficulties in understanding the words used by service providers.…”

“…Furthermore, parents reported in the reviewed studies that professionals often used language that was difficult for them to follow (DuBay et al 2018;Hussein et al 2019;Luong et al 2009) and, therefore, sufficient opportunities must be given to them to ask questions and professionals must be aware of this so they can facilitate questioning. The parents, both mothers and fathers, can experience significant anxiety, stress, and sadness during the diagnostic assessment and the disclosure of the diagnosis (Moh and Magiati 2012).…”

Helping families caring for children with autism: what could social workers do?

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