Background: Living with heart failure, a debilitating disease with an unpredictable course, requires ongoing adaptation and management not only from patients but also from their families. Family caregivers have been known to be key facilitators of self-management of heart failure. An integrative understanding of the experiences of family caregivers will provide essential information for improving the quality of life of persons with heart failure and their families. Aims: This study aimed to integrate and synthesize the findings of qualitative studies on family members’ experiences of caring for patients with heart failure. Methods: We employed the meta-ethnography methodology. Five electronic bibliographic databases were used to retrieve studies published from April 2009–March 2019 that explored family caregivers’ experiences of caring for patients with heart failure. Twelve qualitative studies were finally included for the synthesis, based on the eligibility criteria. Results: Three themes were identified: “shouldering the entire burden,” “starting a new life,” and “balancing caregiving and everyday life.” These three themes illustrate how family caregivers fulfilled caregiving roles, what helped them juggle their multiple responsibilities, and how they struck a balance between life as caregivers and individuals in their own right. Conclusion: This review provides a deeper understanding of family caregivers’ experiences of caring for patients with heart failure. The findings can help healthcare providers in the development and implementation of tailored interventions for both patients and family caregivers.
AimsTo explore heart failure patients’ needs and perspectives for using mobile health technology at home before developing a mobile phone‐based heart failure self‐care intervention.DesignA qualitative interview study.MethodsPurposive sampling was used to conduct semi‐structured individual interviews with patients diagnosed with chronic heart failure (N = 20). Data were collected from November 2018 – May 2019. All interviews were audio‐recorded and transcribed verbatim and data were analysed using qualitative content analysis.ResultsThe four themes that emerged from the interviews were as follows: ‘The demand for reliable and customized health information’, ‘Valuable features of mobile phone applications’, ‘Barriers to adopting mobile health service’, and ‘Expected benefits of using mobile health technology’. Participants in this study required personalized health‐related information and reminders for improving their self‐care behaviours. However, while difficulties in using mobile phone applications posed the main obstacle, users expected mobile health services to improve their overall quality of life.ConclusionDespite mobile phone technology's potential benefits for effective self‐care strategies at home, there were some obstacles such as security issues, application costs, and the need for user friendly designs and reliable information for patients’ optimal use.ImpactThis study highlights that healthcare professionals should consider patients’ needs and preferences to promote the acceptability of mobile health technology. This study's findings can guide the future design and implementation of mobile health interventions for improving self‐care among patients with heart failure.
HOW TO OBTAIN CONTACT HOURS BY READING THIS ARTICLE INSTRUCTIONS 1.2 contact hours will be awarded by Villanova University College of Nursing upon successful completion of this activity. A contact hour is a unit of measurement that denotes 60 minutes of an organized learning activity. This is a learner-based activity. Villanova University College of Nursing does not require submission of your answers to the quiz. A contact hour certificate will be awarded once you register, pay the registration fee, and complete the evaluation form online at http://goo.gl/gMfXaf. To obtain contact hours you must: 1. Read the article, "Effects of the Evidence-Based Nursing Care Algorithm of Dysphagia for Nursing Home Residents" found on pages 30-39, carefully noting any tables and other illustrative materials that are included to enhance your knowledge and understanding of the content. Be sure to keep track of the amount of time (number of minutes) you spend reading the article and completing the quiz. 2. Read and answer each question on the quiz. After completing all of the questions, compare your answers to those provided within this issue. If you have incorrect answers, return to the article for further study. 3. Go to the Villanova website listed above to register for contact hour credit. You will be asked to provide your name; contact information; and a VISA, MasterCard, or Discover card number for payment of the $20.00 fee. Once you complete the online evaluation, a certificate will be automatically generated. This activity is valid for continuing education credit until October 31, 2018. CONTACT HOURS This activity is co-provided by Villanova University College of Nursing and SLACK Incorporated. Villanova University College of Nursing is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation. ACTIVITY OBJECTIVES 1. Explain the development and testing of the Evidence-Based Nursing Care Algorithm of Dysphagia (ENCAD) in long-term care settings. 2. Review the outcome of implementing the ENCAD for dysphagia management in a nursing home. DISCLOSURE STATEMENT Neither the planners nor the authors have any conflicts of interest to disclose. Standardized nursing care protocols for dysphagia management have not been established in nursing home settings in Korea. The purpose of the current study was to examine the effect of the Evidence-Based Nursing Care Algorithm of Dysphagia (ENCAD) on risk of dysphagia, oral health, and dysphagia-specific quality of life among nursing home residents. The ENCAD was administered to 40 residents in one nursing home in urban South Korea for 6 months. A control-intervention, time-series design was used, under which participants served as their own controls. Oral health, risk of aspiration, and dysphagia-specific quality of life were measured at baseline, post-control, and post-intervention. Findings showed that risk of aspiration (p < 0.01) and dysphagia-related quality of life (p < 0.001) improved significantly after the ENCAD ...
In the context of population aging, enhancing the health of older patients has become an urgent issue for public health. Health education and health literacy need to be further understood from the healthcare providers’ standpoint to increase older patients’ effective application of such information into their daily lives. We aimed to further understand nurses’ perspectives on the education of older patients and their health literacy, as nurses are one of the frontline providers interacting with older patients. In total, 16 nurses and nurse practitioners who had 5 or more years of clinical experience participated. Data were collected via face-to-face interviews and emails. Data analysis followed the thematic analysis suggested by Braun and Clarke. Five themes emerged from the analysis, as follows: attitudes that are hard to change; physical and cognitive functional barriers to understanding teaching materials; family caregivers—surrogate vs. gatekeeper; major contexts that moderate the elderly’s health literacy; and strategies to enhance teaching effectiveness and health literacy. These findings illustrate the conditions pertinent to communication with older adults from the patients’, providers’ and healthcare delivery viewpoints. Systemic assistance and interventions specialized for older patients and their healthcare providers need to be developed and tested to improve clinical practice and patient health literacy.
Background: Although the concept of family resilience has had increased popularity in recent studies, conceptual and methodological issues need to be addressed. Aim: The purpose of this paper is to analyze the current status of the concept of family resilience in research and to suggest future needed directions for research. Methods: The structure of the analysis derives from Rodgers' evolutionary concept analysis. Data for the analysis were retrieved using six electronic databases through phrasal search with "family resilience" as search terms. 38 were included in the current review. Results: Six dimensions of family resilience were identified: 1) collective confidence; 2) interconnectedness; 3) positive life view; 4) resourcefulness; 5) open communication patterns; and 6) collaborative problem-solving. Three possible antecedents of family resilience were identified: 1) perceived sense of disequilibrium; 2) spirituality/shared belief systems or religious beliefs; and 3) families' strong will to overcome adversities. Consequences of being resilient include: 1) acceptance of the situation; 2) change in life perspectives; 3) enhanced relationship qualities; 4) reinforcement of resilient properties; and 5) improved health-related outcomes. Conclusion: Although the concept of resilience has been adopted as a useful strength-based perspective to understand family adaptation in the presence of adversity, it still needs further conceptual and methodological refinements. Multiple dimensions, cultural differences and variations of the concept within longitudinal designs should be examined with data gathered from multiple family members in order to improve family resilience research and its application to nursing practice. Implications for future research and intervention are suggested.
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