on behalf of the WE-THRIVE Group Authorship Statement: The following are members of WE-THRIVE (Worldwide Elements to Harmonize Research in Long Term Care Living Environments): [To insert all participants in domain discussions and IAGG-GSA session who wish to be included; we are following the ICMJE guidelines for consortium authorship, as operationalized by BMJ Special articles do not involve original research but instead provide novel interpretation or synthesis of information in 1 an area of general interest to readers of the journal. Examples of special articles include consensus statements, 2 clinical tools, practice guidelines, and discussion of new policies or regulations. Manuscripts may be solicited by the 3 editors or submitted at the initiative of authors. The body of the submission (excluding abstract and references) 4should generally be limited to 3,000 words; it can include 3 tables or figures, and 50 references. An unstructured 5 abstract of up to 300 words is required, and specific headings to organize the text are not prescribed; however, the 6 text should conclude with a section entitled "Implications for Practice, Policy, and/or Research." 7 8 ABSTRACT 9To support person-centered, residential long-term care internationally, a consortium of 10 researchers in medicine, nursing, behavioral and social sciences from 21 geographically and 11 economically diverse countries have launched the WE-THRIVE initiative to develop a common 12 data infrastructure. The consortium aims to identify measurement domains that are 13 internationally relevant, including in low and middle income countries, prioritize concepts to 14 operationalize domains, and specify a set of data elements to measure concepts that can be used (CDEs) initiative. Four domains were identified, including organizational context; workforce and 21 staffing; person-centered care; and care outcomes. Using a nominal group process, WE-22 103 who facilitated domain-specific discussions. Domain-specific discussions focused on potential 104 concepts in each domain that were common to LTC settings across represented countries. The 105 domain committee chairs met in monthly WE-THRIVE steering committee meetings to report 106 updates and share challenges and ideas across subgroups. Figure 1 summarizes the 107 developmental timeline of WE-THRIVE's work, totaling 8 steering committee meetings and 9 108 domain committee meetings that occurred in preparation for IAGG 2017. 109Because of the group's commitment to global inclusiveness, a standing item for the 110 steering committee and the domain committee meetings was to identify new WE-THRIVE 111 members, especially those from low and middle-income countries (LMICs), to vet the work to 112 date. We built an inclusive, flexible network of researchers with ongoing participation through 113 face-to-face or distance-based technology that was not limited to researchers who could attend 114 IAGG 2017. This approach is consistent with the ESSENCE on Health Research initiative's 115 principle of building collaborativ...
To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models.
Nursing students are the future of nursing and are situated between the expectation of the public: that they will receive compassionate care, and the profession: that it will continue to develop technically to meet the needs of the changing healthcare economy. Research has focused on the factors affecting registered nurses' values in care, however, less is known regarding the factors that shape nursing students' values, attitudes, and perceptions of compassionate care. Six focus group discussions with 23 adult branch nursing students (years 1-3) from a United Kingdom (UK) university were conducted to ascertain their understanding of personal and professional values, factors influencing these values, and whether they felt these values influenced the way they provided compassionate care? Qualitative thematic analysis resulted in 5 themes, 3 of which were the focus of this paper: general values, fundamental nursing and nursing values. Participants considered a range of influencers of their general values, and demonstrated a transparency between their personal and professional values, with respect and Journal of Research in Nursing 0(0) 2 dignity being important. Fundamental nursing was complex to consider, but was considered to orientate around the provision of care in a compassionate way. Keywords Values, care and caring, compassion, nursing students, qualitative research, crosssectional design '[Fundamental nursing] adds a lot of value to people's lives that isn't necessarily measured' (FG3, P1, L156). 'Whatever the patient needs': Compassion. Participant's implied that there was a mutual relationship between dignity and compassion: Article 19 '[...] treating [the patient] with dignity and upholding their values, because I think dignity can be defined [...] but I think dignity is the same for most of us, we have got an idea of what that is' (FG1, P2, L70). Participants asserted that compassion was communicated through the use of good interpersonal skills such as active listening and the use of empathy: '[...] if you're just doing tasks [...] you're not actually realising that that person's probably been through two world wars [...] the person may never have been outside their home for the last 6 years, and you're the last person they've come across' (FG3, P2, L60). Similarly, empathy is communicated through active listening, conveying an acknowledgment of the patient as a person with values and beliefs: '[Compassion is demonstrated] by acknowledging [the patient's] values [...] listening to them.' (FG3, P1, L63, 65). Ultimately, fundamental nursing is dependent on the interconnectedness of care and compassion, which are underpinned and enhanced through the maintenance of Journal of Research in Nursing 0(0) 20 dignity and respect: '[Fundamental nursing implies] to build on other things as care, [such as] dignity [and] respect.' (FG5, P6, L73). There was a definite stance that fundamental nursing is about achieving 'whatever the patient needs'. While this appears at odds with the aforementioned complexities determin...
It is concluded that FLO or use of similar mobile phone protocols can be a useful addition to approaches to improve undergraduate nursing student retention rates.
The COVID-19 pandemic has highlighted the stark racial and ethnic inequities experienced by people belonging to historically marginalized groups. As direct care providers, nurses and midwives, who also represent the largest healthcare workforce in the world, should have a deeper understanding of the term "ethnicity" to provide culturally humble person-centered care (Ekman et al., 2011).Ethnicity is a complex social construct and is attributed to a conception of shared cultural heritage (Scupin, 2012). Relatedly, an ethnic group is a collection of people who share a common history, culture, and ancestry. Ethnicity has no biological or scientific meaning; however, the language used by nurses and midwives to discuss this social construct should be accurate, culturally humble, and inclusive (Flanagin et al., 2021). Categories for ethnicities differ globally and their nomenclature change over time depending on social and political forces. We recognize that given the global readership of Research in Nursing & Health, the categories for ethnicities are context-specific for the United States. In its late 1990s revision of demographic data classification standards, the U.S. Office of Management and Budget in its revised standards on the federal classification of data on race posited that the
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