Objective To examine the associations between sleep problems and quality of life (QoL) in children with cerebral palsy (CP). Methods Prospective correlational study using parent-report forms to measure QoL and sleep disorder symptoms. Two groups comprised of 41 children with CP and 91 typically developing (TD) controls age 8–12 years participated in a prospective correlational study. Results Measures were the PedsQL-4.0 Generic scales and the Pediatric Sleep Questionnaire, with subscales of interest including sleep disordered breathing (SDB), excessive daytime sleepiness (EDS), insomnia (INS) and snoring (SNOR). Hierarchical regression analyses indicated that EDS contributed unique variance in physical QoL, and INS contributed unique variance in psychosocial QoL in children with CP; for TD children, sleep disorder symptoms were infrequent and not associated with physical or psychosocial QoL. Conclusions Findings highlight the importance of assessing sleep difficulties when addressing the needs of children with CP.
Objective To examine between-group differences in the associations between aspects of processing speed assessed with an inspection time task, and attention-deficit/hyperactivity disorder (ADHD) symptoms. Research Design Two groups comprised of 34 children with cerebral palsy (CP) and 70 nonaffected peers (Control), ages 8 – 16, participated in a prospective correlational study. Measures included a visual inspection time task and the Conners’ Parent Rating Scale – Revised: Long Version. Results Children with CP exhibited significantly slower processing speed, and more symptoms of inattention and hyperactivity than Controls. Significant associations between inspection time and ADHD symptoms were found only in the Control group. Conclusions Findings have implications for clinical assessment and understanding of attentional risks associated with CP.
This study was conducted to demonstrate feasibility of utilizing a modified SEIQoL-DW with children by examining self-generated domains of quality of life in children with and without cerebral palsy. Study samples were children, ages 6-12, (mean 8.9, SD 1.8) including 41 children with cerebral palsy (CP) and 60 children who were age and gender matched peers without disability. Quality of life was assessed with a modified Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW). Group differences in overall ratings of quality of life were not significant; however, there were significant group differences in the frequency and hierarchy of self-generated domains. Within the group with CP, functional ability was not associated with quality of life. KeywordsIndividual quality of life; Quality of life; School-age children; Cerebral palsyThe definition of quality of life (Qol) has changed dramatically since its conception during the 1940s. Previously, thought of as a construct measuring physical health, a more contemporary definition incorporates the notion of subjective reports of overall well being (Livingston et al. 2007). The construct of quality of life now includes what a person can do and is no longer just an assessment of health status. Additionally, the current definition of QoL, as defined by the World Health Organization, stresses the importance of considering the individual's cultural context when examining the construct (Bjornson et al. 2008).Quality of life is, therefore, a multi-dimensional, dynamic and person-centered construct (Murrell 1999) which includes an assessment of subjective well-being (Murrell 1999;Ring et al. 2007). Determinants of well-being are age-specific, developmentally derived, and experiential . The dimensions of well-being in children are posited as physical, social, emotional, and cognitive (Zaff et al. 2003). Children's views about their quality of life domains were not encouraged until recently (House of Commons Health Committee 1999). Previous research has identified key domains of subjective well-being for children as Correspondence to: Seth Warschausky, sethaw@umich.edu. including family, friends, school, social activities with peers, physical play, and quiet time (Bedell and Dumas 2004;Buysse 2002;Eisenberg et al. 1997;King et al. 2003;Simeonsson et al. 2001). NIH Public AccessThe constructs of quality of life (QoL) and health-related quality of life (HRQoL) are often used interchangeably in the literature. However, HRQoL was developed to assess aspects of health status and one's response to medical treatment and illness outcomes, while QoL assumed to be used to evaluate issues unrelated to the context of health care (Drotar 1998;Hunt 1997;Bjornson et al. 2008). Health-related quality of life measures are primarily for the purposes of discrimination, prediction, and evaluation to improve the health outcome (Bjornson and McLaughlin 2001). Health-related quality of life assessments also have the potential to improve clinical decision-making b...
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