Introduction Despite advances in treatment, head and neck cancer (HNC) patients often experience considerable functional impairment during and following treatment. As a result, family caregivers are essential in a patient’s recovery; however, few caregivers are well-prepared to handle the extensive caregiving needs of this patient population. To date, little is known about HNC caregivers’ informational needs in this role. Thus, we surveyed a sample of HNC caregivers about their informational needs including those related to interacting in the medical context as a caregiver and meeting patient needs. We also asked these caregivers their preferences for obtaining caregiving information. Methods We conducted a cross-sectional study of 59 family caregivers for HNC patients who had completed radiation therapy at a comprehensive cancer center. Results The majority of caregivers (74.6%) reported having high information need at diagnosis related to interacting as a caregiver. Although the need for such information decreased over time, over half still had a high need for information at treatment end. Importantly, caregivers who desired information about reducing patient pain and distress also reported having greater informational needs on issues related to interacting in the medical context. Further, the caregivers most often preferred to receive information from health care professionals as a first source. However, preferring an informal (e.g., Internet) resource at first was significantly associated with needing information on how to talk to a doctor or nurse. Discussion The development of evidence-based resources and tools for HNC caregivers as well as clinicians may help caregivers more effectively manage patient symptoms and warrants further attention. Further, Internet resources may represent an effective resource for providing caregivers with strategies toward enhancing communication with healthcare professionals.

Information about anthrax released by news media from October 4 to December 3, 2001, was identified, sampled, coded, and compared with information released by CDC during that period using statistical analysis. In addition, communications about two anthrax-related issues were examined in depth. The quantitative analysis showed that, overall, CDC information releases and news coverage tracked fairly closely. When weight was defined as number of mentions, both sources gave the same weight to reports of risk for the population. The news sample gave roughly half the weight as CDC to who was exposed, how people were exposed, and what role antibiotics play in preventing anthrax. The samples were widely divergent (CDC high, news sample low) for public health precautions and other details. The in-depth, qualitative analysis showed that some reporters misinterpreted information provided by CDC, but they responded to requests to clarify the issue. The findings of this study suggest ways to improve future crisis communication efforts and demonstrate how differing methods of analysis can yield substantially different conclusions.

No abstract

Crowdsourcing is a problem-solving approach that taps the knowledge, energy, and creativity of a global, online community. Like marketing, crowdsourcing originated and continues to evolve in the private sector. Health communicators and social marketers can use crowdsourcing across the research-development-dissemination process. This article provides an overview of crowdsourcing and how it can be used to speed up and enhance social marketing and health communication. Nielsen's 1/9/90% model is presented as a guide for engaging appropriate crowds for tasks throughout the development process. The four Fs that motivate online contributors--Fun, Feeling good (fulfillment), Fame, and Fortune--are also presented as ways of incentivizing crowd engagement and matching the incentive to the task at hand. Crowdsourcing resources, such as curating agencies, websites, and crowd labor markets, can be tremendous force multipliers. If done strategically, crowdsourcing has the promise of giving well-researched and creative social marketing results for less money and in less time than traditional methods.

No abstract