This review summarises ongoing developments in personalised medicine and individualised medicine in chronic obstructive pulmonary disease (COPD). Currently applied classification systems largely ignore the complexity and heterogeneity of the COPD syndrome. Personalised medicine has to consider the influence of unique circumstances of the person, which contribute to this heterogeneity and complexity. Pulmonary rehabilitation is described as a comprehensive, individualised intervention based on thorough assessment of identifiable treatable traits. Partnership in care will become a crucial factor to improve and maintain health. Tolerating uncertainty and unpredictability will enrich future doctor-patient relationships.
The independent and central role of the patient with a complex chronic respiratory disease in targeted, personalized disease management strategies is becoming increasingly important. Patients are the ones living with the disease and are finally responsible for their lives underlining their role as essential members of the interdisciplinary treatment team. Areas covered: The present paper narratively reviews existing research and discusses the special, as well as specialized, role of the patient with a complex chronic respiratory disease in the healthcare system and highlights fundamental elements of the (future) relationship between patient and healthcare professionals. Expert commentary: Since the chronic respiratory disease at hand is part of the patient's entire life, we need holistic, personalized approaches optimizing patients' quality of life by not only treating the disease but considering the patients' whole environment and where healthcare professionals and patients are co-creating value care.
In this paper we present our preliminary work on monitoring data License accoUntability and CompliancE (LUCE). LUCE is a blockchain platform solution designed to stimulate data sharing and reuse, by facilitating compliance with licensing terms. The platform enables data accountability by recording the use of data and their purpose on a blockchain-supported platform: LUCE allows for individual data to be rectified and erased. In doing so LUCE can ensure subjects' General Data Protection Regulation's (GDPR) rights to access, rectification and erasure. Our contribution is to provide a distributed solution for the automatic management of data accountability and their license terms.
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