Context:Parents' despair and feelings of grief, as well as communication and coordination that is less than adequate between the parents and the palliative team, can affect the provision of a qualified palliative care plan for children and their families.Aims:This study aims to explore the parents' experience in caring for children with cancer under palliative care condition.Setting and Design:The research applied descriptive qualitative phenomenology design.Subjects and Methods:The study was conducted at Jakarta, Bogor, and Bekasi. Parents who caring their child with cancer under palliative care were in-depth interviewed with open-ended question. Data were then analyzed using the Colaizzi method.Results:This study resulted in two themes, still hoping for a miracle of God and always being surrendered while under palliative care. Parents still hope for a miracle of God to keep having their children during palliative care. The forms of surrendering exhibited by the parents in this study are believing in God, praying to God, saying thanks to God, relying on God, and preparing to face the deaths of their children.Conclusion:This study shows that during palliative care, parents cannot be separated from their relationship with God. Therefore, nurses are vital to the continuous assessment of parents' spiritual needs and to the facilitation of need fulfillment involving family and religious figures.
Kemampuan perawatan diri anak tuna grahita, kemampuan perawatan diri dapat dipengaruhi oleh beberapa faktor, baik faktoreksternal (karakteristik orangtua dan lingkungan) maupun faktor internal (karakteristik anak). Penelitian ini bertujuan untukmengetahui faktor-faktor yang berhubungan dengan kemampuan perawatan diri anak tuna grahita. Rancangan penelitian crosssectional dengan sampel adalah 65 orangtua anak tuna grahita di Sekolah Luar Biasa (SLB). Analisis data menggunakan ujiChi-Square dan regresi logistik ganda menunjukkan kemampuan perawatan diri pada anak tuna grahita masih rendah.Terdapathubungan bermakna antara pendidikan orang tua, umur, dan kekuatan motorik pada anak tuna grahita dengan kemampuanperawatan diri (p < 0,005). Faktor paling dominan yang mempunyai hubungan adalah faktor kekuatan motorik anak tunagrahita dengan OR= 4,77.
This study aims to determine the correlation between parents’ self-efficacy and the quality of life of children with cancer aged 8- 12 years. Quantitative research using a crosssectional design was carried out on 39 parents and 39 children with cancer. The participants were selected using a consecutive sampling method. The measurement instruments used were the Self-Efficacy for Parenting Task Index (SEPTI), the Pediatric Quality of Life InventoryTM (PedsQLTM) 4.0 Generic Core Scale, and the PedsQLTM 3.0 Cancer Module in the Indonesian version. Data analysis was performed using Pearson’s correlation coefficient. The results showed that parents’ self-efficacy and the quality of life of children were strongly correlated and that the direction of the correlation was positive (r= 0.680). Parents’ self-efficacy and quality of life children with cancer were also strongly correlated, and the direction of the correlation was positive (r = 0.715). It is recommended that parents and children with cancer ensure the adequate management of cancer treatment.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.