Background: Speech and language therapy can provide beneficial outcomes in post-stroke aphasia rehabilitation, and intensity is a key component of a successful programme (Brady et al. 2016). Information and communication technologies (ICT) may offer an option for the provision of intensive rehabilitation but the views of those undertaking this mode of rehabilitation must be considered to ensure motivation and adherence with self-administered rehabilitation. There is no consensus measure for recording feedback from people with aphasia on user experience of ICT-delivered aphasia rehabilitation. This paper reports on the collaborative development of a feedback questionnaire with people with aphasia for people with aphasia.Aims: There are three research aims (i) to develop a questionnaire to facilitate feedback on ICT-delivered aphasia rehabilitation by collaboratively working with people with aphasia in the design process, (ii) to describe the development process and the co-design techniques employed, and (iii) to explore the experiences of co-designers in the development process.Methods and Procedures: Using public patient involvement (PPI) in health research, a codesign process was employed throughout 6 group workshops. Six people with aphasia (age 43 to 76 years of age) and with a range of aphasia severities (Western Aphasia Battery Aphasia Quotient range 24.4 -83) engaged in the co-design process. The final product, an online user feedback questionnaire, was developed. Individual exit interviews were carried out with the co-designers after the workshops, and a thematic analysis of the interview data was completed.Outcomes and Results: The final questionnaire provides an outcome measure that investigates: cognitive workload, satisfaction, programme functionality and ease of use, and the level of assistance required when engaging in ICT-delivered aphasia rehabilitation. It is presented as an online survey in an aphasia-accessible format. Following the co-design experience, four themes were identified within the exit interviews: Group Dynamics, Balance of Complexity of Tasks, Reflection on Abilities and Positive Experience. The co-design process provided opportunities for social interaction with other people with aphasia and allowed co-designers to reflect on their own abilities. The workshops were considered accessible and facilitated their engagement in the co-design process. The process was inclusive and the co-designers reported feeling comfortable about contributing in the workshops and this was also noted in their feedback in the individual exit interviews.Conclusion: People with aphasia can, and should, be included in all stages of the aphasia research process and especially in the development and design of evaluation measures for use by people with aphasia.
Student-led clinics are being established internationally as a means of practice education within a variety of disciplines. These clinics can provide opportunities for students in health care professions to have ‘real life’ clinic experiences while also providing beneficial outcomes for service users. This paper reviews the preliminary experiences from thirteen uni-disciplinary student-led clinics (thirty two students in total) in the disciplines of Occupational Therapy (OT), Speech and Language Therapy (SLT) and Physiotherapy (PT). These clinics were part of the placement experience of the students in an Irish University between 2011 and 2013. Clinical Education Quality Audit (CEQA) questionnaires (Ladyshewsky & Barrie, 1996) were used to explore the student experience of these placements, and practice educators were given an opportunity to discuss the benefits and challenges of the placements with the University Practice Education team. The data collected was analysed using thematic analysis. A number of themes emerged from the data: Environment, Organisational issues, Professional development / growth, and Relationships. These themes highlighted both positive and challenging features of the placement experiences. This paper will discuss the benefits and challenges of these student-led clinics and outline that overcoming challenges may be an additional important aspect of learning in innovative clinical experiences
Purpose: Information and Communication Technologies (ICT) can provide an option for the delivery of intensive aphasia rehabilitation but the users' views (i.e. People with Aphasia) must be considered to ensure satisfaction, motivation and adherence with this mode of rehabilitation. The aim of this literature review is to provide a critical overview of studies where feedback was elicited from participants about their experiences with ICT-delivered aphasia rehabilitation. Methods: A systematic search using six electronic databases was conducted in July 2015 and updated in May 2019. Studies of synchronous telerehabilitation and interventions targeting compensatory strategies were excluded from the review. Studies retrieved were screened for eligibility and information was extracted on the characteristics of each study, methods of data collection and study outcomes.Results: Seventeen studies met the inclusion criteria including studies with quantitative, qualitative and mixed-methods research designs. The studies employed a variety of data collection methods, examining a number of ICT-delivered aphasia rehabilitation activities and the findings investigated aspects of feasibility, usability and acceptance of this mode of rehabilitation. Conclusions:The findings indicate ICT-delivered aphasia rehabilitation is considered an acceptable mode of rehabilitation by people with aphasia who reported generally positive feedback, though variation among personal perspectives and experience is noted. There is currently no consensus measure of self-reported feedback in ICT-delivered aphasia rehabilitation.
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